Jul 29, 2021
Episode 100: Raising a Child With Spinal Muscular Atrophy With Guest Megan Fabrizi
In this episode, guest Megan Fabrizi discusses raising children with spinal muscular atrophy. When Liam was born, he was having difficulty regulating his temperature. He wasn’t moving his body. At his 4 month visit, he was diagnosed...
Jul 22, 2021
Episode 99: Raising a Child With Multiple Complex Medical Conditions With Guest Tammy Flynn
In this episode, guest Tammy Flynn discusses raising children with complex medical conditions. Her son Marcus has numerous complex medical conditions, including Ehlers Danlos syndrome, Sherman’s kyphosis, EOE (eosinophilia of...
Jul 15, 2021
Episode 98: Dafne Wiswell's Story of Raising Children With Type 1 Diabetes and Ankylosing Spondylitis
In this episode, Dafne Wiswell discusses her son’s experience with Diabetes Type 1 and her daughter’s experience with juvenile arthritis and Ankylosing Spondylitis. Her son was diagnosed with Diabetes when he was 2....
Jul 8, 2021
Episode 97: Raising a Child With Marfan Syndrome With Guest Allison Pullins
Episode 29: Raising a Child With Marfan Syndrome With Guest Allison Pullins
In this episode, Allison Pullins discusses her experience raising a child with Marfan Syndrome. James was diagnosed with this connective tissue disorder when he was 2...
Jul 1, 2021
Episode 96: Alternative Childcare Solutions With Guest Shannon Parola
In this episode, guest Shannon Parola discusses alternative child care options for families with special needs children. During COVID-times, child care has been very tough to find, and often not safe. Shannon discusses that there are numerous options...